Epilepsy Support Groups are helping people understand epilepsy better. Support groups are a great way to make connections, participate in the community and raise awareness about epilepsy. Surrounding yourself with others who are going through the same learning process helps build the community stronger in accepting epilepsy. Epilepsy effects 1 in 26 people, but it does not just effect that one individual, it effects their family and friends as well. Ultimately, a family support group offers a powerful combination of information, emotional support, and connection. It's a place where you can feel understood, learn from others' experiences, and build a supportive network that can make the journey of living with epilepsy within your family a little less overwhelming and a lot more manageable.

Depending on the severity of a seizer, their day to day lives can be challenging. It is common for parents, sibling, spouse or friends of someone with epilepsy to experience anxiety, confusion or responsible for someone who is having a seizure. As a child, teenager or parent, growing up with epilepsy is a big adjustment that comes with stress and confusion. An epileptics biggest fear is losing their independence or being treated differently, so it is critical early on in the process to help understand what they are going through to make the transition easier. Finding the right guidance can mean finding understanding, and ways to cope or to feel more in control about living with epilepsy.

How Will a Support Group Specifically Help You?

• If you're a parent: You can connect with other parents who understand the worries about your child's safety, their educational needs, and the impact epilepsy has on their development and social life. You can share strategies for advocating for your child and find emotional support from others who are also navigating parenthood with epilepsy in the picture.

• If you're a spouse or partner: You can connect with others who understand the unique dynamics of a relationship where epilepsy is a factor. You can discuss the impact on your partnership, share coping mechanisms for managing seizures and their aftermath, and find support for your own well-being.

• If you're a sibling or other family member: You can connect with others who understand the complexities of supporting a loved one with epilepsy within the family unit. You can share your experiences, learn how to best offer support, and address any unique challenges you face.

• For all family members and caregivers: Support groups provide a vital outlet to discuss the emotional toll of caregiving, share strategies for preventing burnout, and learn how to prioritize your own well-being while supporting your loved one.

Having a community of people surrounding you with comfort and understanding during a confusing time can be the most helpful things you can do for someone. Epilepsy varies so much from person to person that other people don't always need to know a lot about epilepsy to offer support. All they need is information that can keep you safe if you are to have a seizure or be prepared in any situation. Living with epilepsy can be isolating, but support groups can be a way to connect with others who understand your experiences. They also are a place to share resources and information.Support groups are available in a number of formats including in person and online. Organizations such as the Epilepsy Foundation are helpful for finding support groups in your area.